Health Policy Aug 7, 2026 By STEVEN ZECOLA Congress will need to amend its faltering Parkinson’s disease legislation if it hopes to achieve meaningful results. Why Change Is Necessary For more than 50 years, the National Institutes of Health (NIH) has pursued Parkinson’s disease (PD) research with limited success. Nearly $5 billion has been spent, yet no approved treatment exists that slows, stops, or cures the disease. This is not a new concern. By the mid‑1990s, Parkinson’s advocacy groups had grown frustrated by the absence of major therapeutic advances since L‑dopa’s approval 25 years earlier. That frustration led to three national plans launched in 2000, 2006, and 2014. None produced meaningful breakthroughs. Congress to the Rescue? Congress attempted to address this stagnation by passing the National Plan to End Parkinson’s Act (Public Law 118‑66), signed July 2, 2024. The Act: Calls for an integrated national strategy to prevent, diagnose, treat, and cure Parkinson’s Establishes an Advisory Council on Parkinson’s Research to deliver annual recommendations to the HHS Secretary, with the first report due within 18 months Requires the HHS Secretary to issue a progress assessmen...
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